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Metadata

Name
Outcome Measures in Duchenne Muscular Dystrophy: A Natural History Study
Repository
ClinicalTrials.gov
Identifier
clinicaltrials:NCT02780492
Description
Novel emerging therapies for Duchenne Muscular Dystrophy (DMD) require a deeper understanding
of DMD natural history. This study aim to assess the natural history of DMD through a
composite assessment tool capable of capturing disease progression linking ambulant and
non-ambulant phases of the disease.
Data or Study Types
clinical trial
Keywords
Myoset, Natural history, North Star Ambulatory Assessment (NSAA), 6 minute walk distance (6MWD), Exon skipping, Duchenne muscular dystrophy, Outcome measures
Source Organization
Unknown
Access Conditions
available
Year
2016
Access Hyperlink
https://clinicaltrials.gov/ct2/show/NCT02780492

Distributions

  • Encoding Format: HTML ; URL: https://clinicaltrials.gov/ct2/show/results/NCT02780492
This project was funded in part by grant U24AI117966 from the NIH National Institute of Allergy and Infectious Diseases as part of the Big Data to Knowledge program. We thank all members of the bioCADDIE community for their valuable input on the overall project.